Clearly there is no "safe place to park it" ... eh ... such is life right???
Ever been in love nuggets???
Clearly there is no "safe place to park it" ... eh ... such is life right???
Ever been in love nuggets???
Speaking of "safe places to park it" ...
Hey lovely people , I've been having some time away to get into some peaceful time to heal , it's not going quite as planned so I will have to go onto a ME management plan with a team of specialists but for now I just wanted to say hello , merry Christmas and lots of love and blessings of the best to all xxx
We miss you Tribe.
Get yourself well ...
Thanks Calz , I'm gonna stop by a bit more often than I was , so thanks for that !hope your lovely family had a cool Yule ? Xx
Nice to see you, keep us informed about what the management plan is if you don't mind, I for one would be very interested, rest doesn't seem to work with ME, at least not for me it hasn't, neither does exercise, its like the body can't recuperate lost energy.Originally posted by Tribe
I will do spirallol xxx
Your right it can't recuperate lost energy and STRESS is like a flame keeping the (M.E) pot boiling !!! It's the sounds and smells that are over stimulating me , raised voices , to much talk . Having to focus on one thing , I wish I could go on a deserted island for a week !!!
Anyways love to you spiral
Last edited by Tribe, 26th December 2013 at 16:05.
It sounds as though you are "hyper vigilant", have you done any hearing tests ?Your right it can't recuperate lost energy and STRESS is like a flame keeping the (M.E) pot boiling !!! It's the sounds and smells that are over stimulating me , raised voices , to much talk . Having to focus on one thing , I wish I could go on a deserted island for a week !!!
I find that I can hear things that I shouldn't be able to, esp not at my age, like high frequencies, I can also smell things others can't & never use smelly toiletries because I find them unbearable.
What if this also applies to sight ? When you consider how small an amount of the electromagnetic spectrum the eyes see, one has to consider that if someone could see a bit more than most this could explain things like seeing ghosts, auras & UFOs of the sort that one person sees & others don't etc.
Yes I hear high frequencies , always ... I also wake up in the middle of the night to sounds no one else hears !!!, I agree I think that it would defiantly explain the ability to see the unseen !!
Oh and it's interesting you talk of smelly toiletrys being unbearable I just had to give away half of my Christmas presents as people brought me smellys again , after me pleading please don't , I can't use them they give me migraines and make me feel like I want to pass out tooo , they are too strong !!
My thoughts:
Hyper sensitivity to any of the senses comes with waking up - at least that's been my experience.
Many new energies coming in now, and everyone is having trouble assimilating. The more dense (unawake) will act out in violent and/or disturbing ways, as it's like a pressure cooker feeling for them. Many of more awake will feel, tired/exhuasted (from unconsciously trying to assimilate them), and from being "hooked up" to an energy source more powerful than what we're use to. We each will have to find our own way to deal with these new energies, but, I'm feeling it's real important to deal with them as I suspect they will continue to accelerate.
Tribe, sounds as if what you're going to do is good. Keep us posted on the results as it's important we all share what works for us, as it may also work for others.
They are also toxic. Not liking these abominations is usually a good sign.
The commercialism of Xmas pressures people to give something, anything. Smellys and other "gifts" of dubious usage are part and parcel of the thoughtless, not uncaring, life many people exist in.
We need improved values. The place to start is with the value we place on ourselves. Meditation and prayer for answers and the will to enact the answers we get would help enormously with proper valuation of ourselves. What would proceed from this endeavor would affect our lives greatly. Including the company we keep.
Family pressures are just that, pressures. One can remove oneself from situations or go along to get along. What is the price of freedom?
Guess what most choose?
The path the seems easy. That is how Luciferic energies work. Offerings that look good, wise and sound but, have a curvein the path obscuring what is not "easy", wise or sound.
It might help if I knew what ME was an acronym for. It might also be useless idle curiosity.
Last edited by modwiz, 26th December 2013 at 19:56.
It is now being called chronic fatigue syndrome as they can no longer make a diagnoses of me without taking a piece if the brain to test , thank god lol
It should be explained that there are a number of different names for what is an illness of uncertain cause affecting many thousands of people. Currently it is estimated that some 250,000 people in Britain are affected by this illness.
Myalgic Encephalopathy or “ME” (a term which The ME Association feels is more appropriate than the original, Myalgic Encephalomyelitis)
Chronic Fatigue Syndrome or “CFS”
Post-Viral Fatigue Syndrome or “PVFS”
Chronic Fatigue Immune Dysfunction Syndrome or “CFIDS”
All types of people at all ages are affected. Severe and debilitating fatigue, painful muscles and joints, disordered sleep, gastric disturbances, poor memory and concentration are commonplace. In many cases, onset is linked to a viral infection. Other triggers may include an operation or an accident, although some people experience a slow, insidious onset.
Effects
In some the effects may be minimal but in a large number, lives are changed drastically: in the young, schooling and higher education can be severely disrupted; in the working population, employment becomes impossible for many. For all, social life and family life become restricted and in some cases severely strained. People may be housebound or confined to bed for months or years.
Prognosis
PLEASE NOTE – before considering prognosis, it is important to obtain a positive diagnosis, which should be determined only by a suitably qualified medical professional.
Most people with ME/CFS fall into one of four groups:
Those who manage to return to completely normal health, even though this may take a considerable period of time. The percentage falling into this category is fairly small.
The majority, who tend to follow a fluctuating pattern with both good and bad periods of health. Relapses or exacerbations are often precipitated by infections, operations, temperature extremes or stressful events.
A significant minority, who remain severely affected and may require a great deal of practical and social support.
A few, who show continued deterioration, which is unusual in ME/CFS. When this occurs, a detailed medical assessment is advisable to rule out other possible diagnoses.
Several research studies looking at prognosis in ME/CFS have now been published (Bombardier and Buchwald 1995; Hinds et al 1993; Sharpe et al 1992; Vercoulen et al 1996; Wilson et al 1994). Results from these studies indicate that ME/CFS often becomes a chronic and very disabling illness with complete recovery only occurring in a small minority of cases. The high level of debility and disability associated with ME/CFS often stems from a combination of symptoms such as fatigue, pain, sleep disturbance, cognitive impairment, and, in some cases, an associated depression.
Studies which have examined functional status and quality of life measures (Buchwald et al 1996; Komaroff et al 1996; Schweitzer et al 1995) also confirm that the scale of impairment across a range of physical and mental activities can be just as great or greater than is seen in many other chronic medical conditions.
(taken from ME/CFS/PVFS An exploration of the key clinical issues, prepared for health professionals and The ME Association members by Dr Charles Shepherd MB BS, and Dr Abhijit Chaudhuri DM MD MRCP, Clinical Lecturer in Neurology, Consultant Neurologist, National ME Centre, Harold Wood Hospital, Romford. Essex. RM3 OAR).
Treatment
There is currently no accepted cure and no universally effective treatment. Those treatments which have helped reduce particular symptoms in some people have unfortunately proved ineffective or even counterproductive in others. An early diagnosis together with adequate rest during the acute phase and during any relapse appear to bring the most significant improvement.
Controversy
ME/CFS has attracted more than its fair share of controversy. Initially, and for many years, there was a debate as to whether it was actually an illness at all. Although the situation is still not perfect, many influential bodies, (The World Health Organisation, the Department of Social Security, the Department of Health, the Royal Colleges of Physicians, Psychiatrists and General Practitioners amongst them) are now in agreement that it is real.
Two major questions now occupy the minds of the people involved – these questions are: “What is it?” and “What is to be done about it?”
While there is a degree of consensus on the different things which can trigger ME/CFS, what then causes it to become chronic has become a topic of hot debate. Loosely, views are split into two schools of thought: one which favours ‘psychiatric’ or ‘behavioural’ reasons and the other (supported by The ME Association) which argues ‘physical’ reasons.There is also an argument which proposes that no such distinction should be made. What also seems possible is that the illness currently defined as ‘Chronic Fatigue Syndrome’ is actually a number of different conditions, all characterised by similar symptoms. (A ‘syndrome’ characterises an illness by its symptoms, not by the underlying disease process.)
The second point, ‘What is to be done about it?’ attracts equally heated debate. Until more information is known, there will remain a wide range of views on how people can be helped. Research into causes, treatment methods and cures continues. Treatment is often aimed at reducing symptoms and can encompass a range of ‘mainstream’ and ‘complementary’ methods, ranging through drugs, homoeopathy, behavioural therapies, acupuncture, diet changes and beyond.
CFS/ME causes extreme tiredness that is different from the normal tiredness that everyone experiences. It makes you less able to cope with levels of activity that were previously normal for you, in your work, school or social life. Even everyday physical activity, such as taking a shower, can make you feel exhausted.
Common symptoms of CFS/ME, which can happen 24 to 48 hours after mental or physical activity, include:
fatigue that lasts more than 24 hours at a level that you used to be able to manage without feeling tired
muscle and joint pain
painful glands in your neck or armpits
a sore throat and headaches
forgetfulness, memory loss, confusion or difficulty concentrating
sleep disturbances – waking up feeling tired or unrested, or having trouble getting to sleep
flu-like symptoms
palpitations (feeling your heartbeat thumping in your chest)
dizziness
sweating
problems with your balance
irritable bowel syndrome (IBS) symptoms such as constipation or diarrhoea and bloating
Over time, you may become depressed or have mood swings.
Your symptoms may vary throughout the day, with some days being worse than others. Most people with CFS/ME find that their symptoms come and go, often returning after illness or stress.
The symptoms of CFS/ME can start after you have been ill with an infection or may develop gradually over months or years.
, I also have fibromyalgia , which is a condition that causes all over body pain . , It is a condition that dove tails wit M.E .
I would like to state that athough I think a lot of my illness was brought on by severe tonsillitis on New Year's Day. 2013 ithe main reason for me is I think it's because I'm hugely empathic to the point of discomfort which is part of me that I cannot change but I can try and minimise the damage !!
Hope that is helpful to thosewho don't know what Me is or is aboutsummer helps me so much and I am grateful for the good days
Last edited by Tribe, 26th December 2013 at 20:40.
I tend to follow a Sethian approach to health and avoid naming ailments. I am not looking to befriend them or keep them around. Naming gives power. Magic 101. You have chosen what works for you........now. Whatever your choice, I wish you success in getting well again.
Health is a very personal and intimate working. For me, mainstream medicine looks at the body and health from a perspective I consider flawed in the big picture. They do excel in naming things and making symptoms change or go away. Sometimes relief of the aggravation of a symptom can give the emotional body the space it needs to get out of the way and let healing take place. In such a scenario, symptom relief is very useful. The body's natural state is health. The technical/medical word for it is homeostasis. Too bad the inventors of the word give so little respect to it. Most likely because it is bad for business.
Last edited by modwiz, 26th December 2013 at 23:54.
Posting Permissions
Reply With Quote
Bookmarks