Well that was fun....NOT!
Yes Kathy you and NAP are correct it should not be such a big deal to get the Opdivo...but it's the best I've got right now and I understand why because this is the way of it for medical care in the United States. Sad to say but true non the less. Imaging if I had nothing it the way of medical insurance. Imagine if I did not pay for the Part B and Part G which is now deducted from my Social Security disability I have now. Best yet imagine if I did not qualify for the Disability!
Well of course I did qualify as I'm pretty sick which again I've tried to mask the best I can with a bit of humor from time to time and just in the reporting of facts that others might someday gain if this they should incur this god awful disease.
As I said before and reiterate: Be your best advocate! Ask questions, and find out what they are indeed doing to you and why.
Today they added more meds to my pre meds. Totaling 8 different meds in one day. It took from 9AM until a bit after 3PM today to complete all the IV meds they put in my body....
They added a new premed for nausea included with the Aloxi and one more which I can't remember at the moment. I'm sort of out of it as I just woke up about a half hour ago.
They added two other things to the mix which at the moment I can't remember as again I'm sort of out of it.
When I get in there tomorrow I will ask and write it down. I know tomorrow they are adding magnesium to the mix. Now I do take already 600 mgs of Magnesium a day already but for some reason they want to add more as my levels were down last week.
Came home with a needle again in my chest so again I have to be careful sleeping so I don't disturb the dressing and dislodge the needle with a tube on the end that is capped off. It does make it easier as I don't have to get stuck three times in a row!
Anyhow I'll let you know what the added meds were sometime tomorrow. I do know they are okay because I asked what they all were and were find based on general overall health. One was in fact today a vitamin supplement I just can't remember what it was right now. Based on that alone you can probably guess that my mind is not quite straight right now so I'm going to stop now and relax for the rest of the night that is left.
I've decided to try St. John's wort for the depression as it's been recommended now a few times...it's herbal and does not have the physical side effects that concern me. If it does not work I will still talk to the staff of doctors that supply my meds. I may even mention to them that I've started it before my next appointment. I don't think they will object to me trying it for depression. We'll see....I'm doing it anyhow. Just thought I'd let you all know.
On to day two tomorrow...by far the harder day in what I've experienced so far. It certainly was the last time that's for sure!
Oh wait...I remembered what one of the things they gave me was...a big bag of fluid with potassium was added today as one of the things they added.
The other thing they added today was Mannitol ...
https://www.ncbi.nlm.nih.gov/pubmed/22298599The adverse effect profile of cisplatin is well documented, but the prevention strategies to alleviate renal impairment due to treatment are less understood. Mannitol plus hydration has been used for several years to alleviate toxicity associated with cisplatin therapy.
The chemo meds I take are Cisplatin and Vp-16
VP-16:
Generic name: Etoposide
Other trade names: Toposar, VePesid, Etopophos
Other name: Etoposide Phosphate
http://chemocare.com/chemotherapy/drug-info/VP-16.aspx
http://chemocare.com/chemotherapy/dr...cisplatin.aspx
And here's song that fits the occasion...No social crisis....just another tricky day for you!
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Originally posted by Melidae
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